Showing posts with label Support Services Network. Show all posts
Showing posts with label Support Services Network. Show all posts

Sunday, October 2, 2011

Yes, It's Cancer: Important To Do List.


Even healthy people need to plan for their future. Look at this task (planning for the days, weeks and months ahead) as nothing more than organizing your closet. You simply don’t want to do it, but it needs to get done. And once it’s organized, you will be relieved you have completed this task.



A good suggestion is to take care of the following task list when you are feeling good and healthy. The following tasks list might be difficult to read, digest, accept and do. This list  was not  easy for me to write when I was diagnosed with my cancer. But I know that these tasks are necessary and important. It’s a fact of life that we will all die someday.  I can’t help but look at the silver lining in everything I do that is unpleasant, sad or difficult. So here is my own two cents…Some people never get the chance for closure. As cancer patients we have the option. The  checklist below is an opportunity to make important decisions so our loved ones don’t have to guess or make difficult decisions for us.




Designate a  healthcare proxy. 

  • A living will allows you to convey your wishes on paper regarding treatment when youcannot personally communicate those wishes.
  • A medical power of attorney allows you to designate someone to make healthcare decisions for you when you are unable to do so. 
Ask your doctor or the patient advocate at the hospital or cancer treatment center to help you learn more about how to make  these arrangements.



Make an appointment with an attorney to create or  update your will.


Give your caregiver or  family member a power of attorney to make financial decisions if you are unable to make  them.

Make sure you know what is covered under your health insurance policy, including palliative or hospice care.

Talk to your employer about your current health status and inquire about disability coverage.

Update your life insurance policy and make sure it is signed by a lawyer and/or a witness.

Make sure your doctors and loved ones have written directions that describe your wishes, including organ donation.

Write down all your banking and life insurance policy information and the location of your safe deposit box and keys. 

Also write down your passwords to your cell phone, email, and online accounts so that your loved one can manage these should it be necessary.

Wednesday, September 28, 2011

Accomodating Employees with Cancer

The Americans with Dissabilities Act   requires private employers with  fifteen (15) employees or more employees as well as state and local government employers to provide adjustments or modifications to enable people with disabilities to enjoy, without discrimination  equal employment opportunities, unless doing so would be an undue hardship.

An employer must provide a reasonable accomodation tha is needed because the limitation caused by the cancer itself, the side effects of medication or treatment for the cancer, or both. For example, an employer my have to accomodat an employee who is unable to work while he or she is undergoing chemotherapy or who has depression as a result of cancer, the treatment for it, or both. An employer, however, has no obligation to monitor an employee's medical treatment  to ensure that he or she is receiving appropriate medical care (i.e. treatment).

Some employees with cancer may need one or more of the following accomodations:

  • leave for doctor's appointments and/or to seek medical care or recuperate from treatment.
  • periodic breaks or a private area to rest or to take medications.
  • adjustments to work schedule and break time.
  • permisson to work from home when possible.
  • modification of office / work area temperature.
  • permission to use work telephone to call doctors.
  • reallocation or redistribution of marginal tasks to another employee and / or
  • reassignment to another job.
Some employees with cancer may need accomodations other than the ones listed above. The employer, therfore, should discuss with the employee his or her particular limitations and whether there is anything the employer can to enable him or her to work. For example, an employer might explore the possibility of providing certain equipment, a temporary transfer to another department or changes in how work is performed.

There are "no magic" words that a person has to use when requesting a reasonable accomodation. A person simply has to tell the employer that he or she needs an adjustment or change at work because of his or her cancer. A request for reasonable accomodations also can come from a family member, friend, healthcare professional or other representative on the employee's behalf.

An employer may request reasonable documentation where a disability or the need for reasonable accomodations is not obvious. An employer, however, is entitled only to documentation sufficient to establish that the employee's cancer is a disability and that explains whe an accomondation is needed. A request for an employee's entire medical record, for example, would be innapropriate, as it likely would include information about conditions other than the employee's cancer.

An employer does not have to grant every request for a reasonable accomodation. It does not have to provide an accomodation that would result in "undue to hardship" to his business or workplace. Undue hardship means that providing the reasonable accomodation would result in significant difficulty or expense. However, if a requested accomodation is too difficult or expensive, an employer should determine whether there is another/alternative easier, less costly accomodation  that would meet the employee's needs.

An employer is not required to provide reasonable accommodations that an individual wants but, rather, may choose among reasonable accomodation options as long as the chosen accomodation is effective. In any case an employer may be required to provide more than one accomodation for the same employee with cancer. The duty to provide a reasonable accomodation is an ongoing one. For example:

  • an employee with cancer may require leave for surgery and subsecuent recovery but may be able to return to work on a part-time or modified schedule while receiving chemotherapy.

An employer must consider each request for a reasonable accomodation and determine whether it would be effective and whether providing it would pose an undue hardship. An employer never has to reallocate essential functions as a reasonable accomodation but can do so if he wishes or needs to for the effective performance of his business.

An employer may not automatically deny a request for leave from someone with cancer because the employee cannot specify an exact date of return. Granting leave to an employee who is unable to provide a fixed date of return may  be a reasonable accomodation under the ADA. Although many types of cancer can be successfully treated - and often cured - the treatment and severity of side effects often are unpredicatable and do not permit exact timetables or accurate calculations.

An employee requesting leave because of cancer, therefore, may be able to provide only an approximate date of return. In such situation, or in situations in which a return date must be postpone because of unforeseen medical developments, employees (or their representatives)  should stay in regular communication with their employers to inform them of their progress and discuss the need for continued leave beyond what  originally was granted.

The employer also has the right to require that the employee provide periodic updates on his or her condition and possible date of return. After receiving these updates, the employer may re-evaluate whether continued leave constitutes and undue hardship to his business.

For more information or guidance regarding workplace accomodations for cancer patients please visit the Cancer Legal Resource Center  or call

  • Toll Free #: (866) THE-CLRC or (866) 843-2572
  • TDD: (213) 736-8310 
  • Fax: (213) 736-1428
  • Email: CLRC@LLS.edu

  
How to Contact the Telephone Assistance Line


Call 866-843-2572 (Monday-Friday, 9AM-5PM Pacific). If you reach their voicemail during business hours, they are assisting other callers. However, they now have an intake form available online. The intake form asks for information about the issue with which you would like assistance. Please consider filling out an intake form and email, fax, or mail it back to them, this will help them assist you in a timely manner.

Click here to complete the intake form online now!

Click here to download the intake form to mail or fax it!

Monday, September 26, 2011

Finding Help for Cancer Treatment Transportation


Many cancer patients have trouble traveling to and from their cancer treatment   because chemotherapy or radiation side effects and complications makes them too weak.


Transportation services are available in many communities and, although the vary, are usually one of these three types:
  • Low Cost van services run by community agencies and some hospitals
  • Volunteer transportation services (where someone will drive you in their car) run by local religious groups and nonprofits.
  • Private transportation services (car services and taxis) the cost of which may be covered by some nonprofits, religious groups or insurance companies.
Tips to Find Help with Transportation

  • Start with family and friends ~ often they want to help out and this is something concrete they can take turns doing.
  • Check with your hospital ~ to see if they have a van service for people coming as outpatients (not admitted to the hospital) for radiation or chemotherapy. Or check to see if you can to arrange to carpool with other other patients.
  • Contact your local  social services government office to see if they provide free or low cost transportation on a public transit system for elderly or disabled individuals (sometimes called "paratransit").
  • Check with your community agencies, like the YMCA, the YWCA, Catholic Charities, Area Agency on Aging, United Way, fraternal orders or local churches.
  • Paying for public transportation (taxis, ambulettes and car services) may be your only option. This can be expensive, so don't hesitate to shop around.  I was able to speak to a supervisor and his manager and after explaining my situation they agreed to a discount rate for regular use.

About The Author: Wilma Ariza is the Founder and Development Director of Stevie JoEllie's Cancer Care Fund a Project of United Charitable Programs Inc., a 501(c)(3) Public Charity Tax ID 20-4286082 Progam 102442. In 2008 her daughter Stevie JoEllie was diagnosed with State II Follicular Thyroid Cancer a few weeks after her 21st Birthday and has "survived" two thyroid cancer recurrences. Learn More About Wilma

Sunday, September 25, 2011

Finding Financial Assistance for Cancer Patients

Cancer Can be a tremendous financial burden on a patient as well as on a family. Besides hospital bills, cancer treatment includes many expenses insurance often doesn't cover, such as necessary transportation and child care. If the person with cancer or caregiver has to stop working, the financial crisis becomes greater. Some relief is available, but it will take effort to piece together what is available to you according to your needs and the specific qualification criteria.
Here are some general tips for finding assistance:

Understand what assistance you are entitled to under the law (these programs are called entitlements). A hospital or community social worker can direct you to the proper government agency. Most entitlement programs take time to process yoru enrollment application forms. The sooner you request information and send in your application, the sooner you will receive assistance.

Take time to review your health insurance policy, as well as any other insurance policies you may have, to better understand your coverage. Ask your insurance company if they can assign you a case manager to help you and answer you questions.
If you need help with hospital expenses, not covered by insurance or copays you no longer can afford ask to speak with a financial counselor in the business office of the hospital who can help you develop a monthly payment plan, process a co-payment waiver for you or a charity care application.
If you expect to run out of money or already have and cannot meet your daily living expenses like rent and food talk directly to your creditors and explain your situation. Many utility and mortgage companies for example will work out a payment plan wih you before a crisis develops.

Don't forget about the power of using your local elected officials. They often have resources and connections that can be useful. If you are having difficulty with Medicaid, calling the office of your state representative might help; for Medicare problems, your federal representative or senator's office may have information and assistance.

To find out who your elected officials are and how to contact them, contact Project Vote Smart at www.vote-smart.org or call the agency toll free 888.868.3762

About The Author: Wilma Ariza is the Founder and Development Director of Stevie JoEllie's Cancer Care Fund a Project of United Charitable Programs Inc., a 501(c)(3) Public Charity Tax ID 20-4286082 Progam 102442. In 2008 her daughter Stevie JoEllie was diagnosed with State II Follicular Thyroid Cancer a few weeks after her 21st Birthday and has "survived" two thyroid cancer recurrences. 

Saturday, September 24, 2011

Getting the Most from A Service: What to Ask.

Sometimes it is more important to know the right questions to ask rather than to know the right answer.

Before you call an organization for information, or to find out if it provides the service you need, it is important to know which questions you are going to ask. Therefore, it is a good idea to:

Write out your questions beforehand.
  • Keep a pen and pad on hand as you speak to someone in person or on the phone to take notes.
Always ask with whom you are speaking, so if you have follow up questiosns you can contact them again.

Once you have found a group or organization that can help you I suggest you ask the following questions which can help you get the most from what they have to offer.


  1. How do I apply for [this service or assistance]?
  2. Are there eligibility requirements ? What are they?
  3. Is there an application process? How long will it take?
  4. What information will I need to complete the application process?
  5. Will I need anything else to get the service or assistance I am requesting?
  6. Do you have any other suggestions or ideas about where I can find help?
These questions will help you be prepared, feel more secure about discussing your needs, and get the most out of the resources that are available to you or your loved one.


About The Author: Wilma Ariza is the Founder and Development Director of Stevie JoEllie's Cancer Care Fund a Project of United Charitable Programs Inc., a 501(c)(3) Public Charity Tax ID 20-4286082 Progam 102442. In 2008 her daughter Stevie JoEllie was diagnosed with State II Follicular Thyroid Cancer a few weeks after her 21st Birthday and has "survived" two thyroid cancer recurrences. 

Friday, September 23, 2011

Cancer Warrior: Fighting Back & Getting Organized


After a cancer diagnosis, many people find that becoming well-organized helps them gain a sense of control over all the information they receive, including financial information. To do this, first steps include finding out who best will answer the specific questions you have and setting up a personal organizational system. 
The following suggestions may help you organize your cancer care paperwork:

  • Find the filing system that works for you. A filing cabinet or simple desktop divider with individual folders keeps key information all in one place and makes it quick and easy to find. File new information as soon as possible, so it doesn't get misplaced. Your files may include notes made during doctor appointments, copies of your laboratory test results, your personal insurance information, and contact information for your doctor’s office, medical center, insurance company, support organizations, and others.

  • Ask your health insurance company if you can be assigned a case manager, so you can talk with the same person each time you need to call. Also, maintain a written record of any conversations with all insurance company representatives, including the date, name of the person you spoke with, and what was said. Put the newest records at the front of your file, so you have a clear and up-to-date list of these discussions.

  • Keep current copies of all insurance policies and refer to them by name and number in any communications about insurance coverage.

  • Write down the list of questions that are most important to you, using the suggestions in this booklet or others. Start with your most important questions to make sure these are answered first.

  • Try to decide ahead of time how to adjust your budget to deal with any loss of income resulting from less time at work, or expenses that are not covered by insurance.

  • List each task you need to accomplish between doctor appointments, and put a check mark beside each one when you complete it to mark your progress.

  • Ask a friend or family member to help you keep track of your regular monthly bills, or consider using a bill-paying service to help keep your payments on time.

Thursday, September 22, 2011

Healthcare Reform & You

In March 2010, the Patient Protection and Affordable Care Act – often called simply Health Reform – was signed into law, changing several rules regarding health care insurance coverage in the United States. For people with cancer, this new law covers areas regarding both the cost of and access to care. Some changes took effect immediately, and others will take effect in the coming years. 
Highlights of the new law are summarized below and are adapted from information from the Kaiser Family Foundation, unless otherwise noted. This list is not intended to be a complete outline, but rather is meant to provide an overview of major areas of health reform relating to the cost of and access to cancer care. More details can be found at the federal government’s website of www.HealthCare.gov.
How Does Health Reform Help You Now?
General Insurance Reform
  • Private health plans are not allowed to place a lifetime limit (called a cap) on the dollar value of a person’s coverage. Subject to certain restrictions, insurers are permitted to place an annual limit on the dollar value of coverage until January 1, 2014, but will not be permitted to enforce annual limits after that date.

  • Insurers cannot take away coverage except in cases of fraud. Previously, insurance companies could revoke coverage for an error or technical mistake in a patient’s insurance application. This practice is now illegal.

  • Insurance plans that offer dependent coverage are now required to make coverage available to adult children up to age 26 (although certain “grandfathered” group health plans may exclude such coverage if the adult child is eligible to enroll in a health plan through his or her own employer).

  • Dependent children under age 19 cannot be denied coverage for pre-existing conditions.
For People Without Health Insurance
  • Uninsured individuals with pre-existing medical conditions now have access to a temporary national high-risk insurance pool program. U.S. citizens and legal immigrants who have been uninsured for at least six months are able to enroll for coverage through this high-risk pool and receive subsidized premiums. (Effective until January 1, 2014.)

  • States must establish a website to help residents identify coverage options in a standardized format. This includes the federal government’s HealthCare.gov website, which provides information on the new law and insurance options for consumers.
Elimination of Co-pays for Preventive Services
Cancer prevention and risk-reduction strategies can lower the physical, emotional, and financial burden of cancer and improve the overall health of cancer survivors, including reducing the risk of the cancer coming back or the chance of a second cancer. The new law includes several provisions to increase access to cancer prevention services:
  • Private health insurance plans issued after September 23, 2010, are required to eliminate co-pays for preventive services recommended by the U.S. Preventive Services Task Force (USPSTF; www.uspreventiveservicestaskforce.org) including but not limited to:

    1. Screening tests for colon cancer for adults over 50.
    2. Annual mammograms for women over 40. Other services to prevent breast cancer will also be covered, including a referral to genetic counseling and a discussion of chemoprevention for certain women at increased risk.
    3. Regular Pap tests to screen for cervical cancer and coverage for the HPV vaccine, which can prevent cervical cancer.
    4. Tobacco cessation interventions, such as counseling or medication to help individuals quit smoking.

  • Co-pays for Medicare-covered preventive services recommended by the USPSTF have been eliminated. The Medicare deductible for colorectal cancer screening tests have also been eliminated. Both changes were effective January 1, 2011.
How Will Health Reform Help You in the Future?
General Insurance Reform
  • Adults cannot be denied coverage for pre-existing conditions. (Effective January 1, 2014.)
  • Waiting periods for coverage greater than 90 days will be eliminated by January 1, 2014.
For People Without Health Insurance
  • Most U.S. citizens and legal residents will be required to have health insurance beginning in 2014. Exemptions can be granted for financial hardship, religious objections, American Indians, those without coverage for less than three months, undocumented immigrants, people in jail, people for whom the lowest cost plan option exceeds 8% of an individual’s income, and those with incomes below the tax filing threshold. (In 2009, the threshold for taxpayers under age 65 was $9,350 for singles and $18,700 for couples.) Penalties for not having health insurance will be phased in beginning in 2014.

  • Medicaid coverage will be expanded to individuals with incomes up to 133% of the federal poverty level who are under 65 and who are not otherwise eligible for Medicare. (The poverty level was $18,310 for a family of three in 2009.) (Effective January 1, 2014.)

  • State-based health insurance exchanges will be established to help people and small businesses with the purchase of coverage. Premium and cost-sharing credits will be available to individuals and families earning up to 400% of the federal poverty level. The Office of Personnel Management, a federal government agency, will begin contracts with health insurance providers to offer at least two multi-state plans in each exchange. (Effective January 1, 2014.)
Elimination of Co-Pays for Preventive Services
  • Co-pays for Medicaid-covered preventive services recommended by the USPSTF will be eliminated, effective January 1, 2013.
For Individuals Participating in Clinical Trials
  • As of January 1, 2014, insurers will not be allowed to limit or drop coverage to an individual choosing to participate in a clinical trial. This applies to clinical trials to treat cancer, in addition to other life-threatening diseases.

Tuesday, September 20, 2011

Cancer Care Costs: Questions to Ask


Bringing up your financial concerns to others is difficult — especially if you don’t know what to say, or who to ask. It's not always clear who the best person is to answer your questions, so talking with your doctor is a good start. Try starting the talk by saying: “I am worried about costs related to my cancer treatment. Can we talk about my concerns?”
Your doctor may not have all of the answers to your financial questions, but can give you resources to help you get the best possible information. Several people and groups will help you find answers, including doctors and their support staff, nurses, social workers, case managers, patient advocacy organizations, and your employer’s human resources department. And, people from your insurance company can help on questions about your specific health care coverage.
Next, use the questions below to help focus the discussion. You don’t need to ask all of these questions – just choose the ones most important to your diagnosis and your financial situation.
Select the ones you are most concerned about, and ask those first. If you think the doctor is the best person to answer your questions, let the doctor’s office know ahead of time that you have some questions that you’d like to ask the doctor during your appointment, so enough time can be scheduled. Be sure to write down the answers so you can go back to your notes later. And, remember: these talks between you and your health care team will continue during your care.
Insurance Coverage and Medical Bills
  • Who handles concerns and questions about health insurance in this office or medical center?
  • Will this person help me work with my health insurance company/provider?
  • Will this person help me figure out my medical bills and the codes on the bills to make sure they are correct?
  • If an insurance claim is denied, who can help me file an appeal?
  • Is there a limit to how much my insurance will cover for my treatment? If so, are my medical bills likely to reach that amount?
  • I already have health insurance. What does the health reform law mean for me?
  • I don’t have health insurance. What does the health reform law mean for me?
  • Where can I find help in organizing my expenses, so I can keep track of incoming bills and plan my budget?
Doctor Appointments
  • How much is my co-pay for each doctor visit?
  • When is this payment due?
  • If I need multiple visits to a doctor’s office, is there a policy where I can pay the co-pay only once or not at all (called a waiver)?
  • Do you offer any payment plans?
  • Will I be billed separately for laboratory tests, such as blood tests? Are they covered under my health insurance?
  • Does my insurance cover other doctor visits, such as for a second opinion?
Cancer Treatment Costs: General
  • Who can help me estimate the total cost of the recommended treatment plan?
  • If I cannot afford this treatment plan, can we consider other treatment options that don’t cost as much?
  • Does my health insurance company need to approve any or all of the treatment plan before I begin treatment?
  • Do you have any financial conflicts-of-interest in recommending this plan for me?
  • Is the treatment facility you are recommending in my health plan’s network?
  • If I need to be admitted into the hospital, what is covered under my health insurance?
  • If I receive treatment as an outpatient, what is covered under my health insurance?
  • Are there ways to change my treatment schedule, if necessary, to work around my job or child care?
  • Will there be a co-pay for each individual treatment?
  • Where can I get low-cost or free counseling or support to help me cope with my diagnosis?
Cancer Treatment Costs: Clinical Trials
  • What expenses will I have if I join a clinical trial?
  • How do the costs of the clinical trial compare with the costs of the standard treatment? Does one cost more than another?
  • Can I be reimbursed for any of the costs of the clinical trial?
Medication Costs
  • What is my prescription co-pay for this drug?
  • Is this prescription a one-time cost, or will it be an ongoing expense?
  • Is this medication on my health insurance plan’s preferred drug list?
  • Can I switch to a less expensive brand-name drug within the same drug class?
  • Is there a generic drug available that will have the same effect? Is it less expensive?
  • Can we regularly go over my list of medications, to see if there are ways to lower my drug costs?
  • For medications for side effects, is there an over-the-counter medicine that has the same effect as the prescribed drug? Is it less expensive?
  • Are there programs that can help cover the costs of my drug(s) for cancer treatment or side effects?
Associated Expenses: Transportation
  • Is there free or low-cost transportation for patients at the medical center where I will have treatment?
  • Are there reduced parking rates for patients at the medical center or doctor’s office?
  • Is there an organization that can help me pay for transportation to and from treatments and medical appointments?
  • If I am traveling a long distance, are there free or reduced-cost hotels or lodging near the treatment facility?
Associated Expenses: Family and Living Expenses
  • If I have trouble paying for basic items, like food or heat, due to the cost of my cancer treatment, are there organizations that can help me?
  • Where can I get low-cost or free child or elder care during my treatment?
  • Where can I get free or low-cost personal items, such as a wig, if needed?
  • Is there an organization that can provide low-cost or free counseling or support to my family?
Associated Expenses: Caregiving, At-Home Care, and Long-Term Care
  • Are there ways to change my treatment schedule, if necessary, to work around my caregiver’s job and schedule?
  • Could we talk about costs of care if I don’t have a family member or friend to go with me to appointments or care for me at home?
  • Are there local organizations that can give low-cost or free home care or other services?
  • Should I plan financially for long-term medical care, such as a nursing home or hospice care?
Associated Expenses: Employment, Legal, and Financial Issues
  • Who can I talk with if I’ve lost income because of my cancer?
  • If I have on-the-job difficulties related to my cancer, who can help me understand my legal rights?
  • If my caregiver has difficulties at his or her job because of my cancer, who can help us understand our legal rights?
  • Where can I find out if my medical and related expenses can be deducted from federal income taxes?
  • Where can I get low-cost or free help with estate planning and legal issues, such as writing my will or granting a power of attorney?
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Stevie JoEllie's Cancer Care Fund is working to develop an access to care grant program for thyroid cancer patients and survivors nationwide. Your financial support is greatly needed. 

Stevie JoEllie's Cancer Care Fund is a project of United Charitable Programs Inc., a 501(c) 3 Public Charity.   Donations are tax deductible as allowed by law and all funds raised by Stevie JoEllie's Cancer Care Fund are received by United Charitable Programs and become the sole property of UCP, which, for internal operating purposes, allocates the funds to the Project (SJCCFThyNet). The Program (SJCCFThyNet) Manager makes recommendations for disbursements which are reviewed by UCP for approval.

THANK YOU!!!!

Monday, September 19, 2011

Understanding Your Health Insurance


Many studies show that successfully managing and treating illness is highly dependent upon access to high-quality health care. In the United States, such access generally requires health insurance to cover or offset the costs of care. Most people obtain their insurance through their employer or through government programs such as Medicare. A key to understanding insurance is knowing the meaning of the terms. 
Here are a few common terms related to health care and insurance:

  • Co-insurance: The percentage of health care costs an insured patient pays after meeting a health care plan’s yearly deductible. For example, an 80/20 co-insurance rate means that the insurance company pays 80% of approved health care costs, and the patient pays the remaining 20% of costs.

  • Co-pay or co-payment: A set fee, in dollars, that an insurance provider requires a patient to pay each time care is received. For example, a visit to the oncologist may cost a patient $30 each time; insurance pays the rest of the visit’s costs. The amount of the co-pay is set by the insurance provider and not the doctor’s office.

  • Deductible: The amount of approved health care costs an insured patient must pay out-of-pocket each year before the health care plan begins paying any costs.

  • Insurance cap: The amount of money an insurance plan will pay in total benefits. Once a patient’s medical bills reach that cap, the plan will no longer provide coverage. (Some rules are changing under the 2010 Health Reform law.)

  • Out-of-network care: Health care providers or facilities that are not part of an insurance plan’s approved list or network are considered “out of network” (as opposed to being on an approved list or “in network”) in a health maintenance organization (HMO) or preferred provider organization (PPO). Out-of-network care often costs patients more than in-network care, is often subject to a deductible, and may require pre-approval for certain services.

  • Out-of-pocket costs: Expenses that must be paid from a patient’s personal financial resources; any expenses not covered by insurance.

  • HIPAA: Health Insurance Portability and Accountability Act. A law that helps protect the privacy of a patient’s individual medical information, provides patients with access to their medical records, and helps people with health problems, such as cancer, get health insurance for themselves and their family members. Learn more at www.cms.gov.

  • Precertification or preapproval: The process of requesting approval from an insurance plan for specific services before they happen, such as a treatment, procedure, or hospital stay; also called pre-approval. Many hospitals and clinics have precertification coordinators, patient navigators, or case managers that help patients with cancer through this process.

  • Pre-existing condition: A medical condition that a person already has when enrolling in a new health plan. Many health plans have a period of time in which they will deny all claims related to pre-existing conditions. However, HIPAA sets limits on how long an insurance company can deny coverage for a pre-existing condition. (Some rules are changing under the 2010 Health Reform law.)

  • Premium: The amount a person or company pays each month to keep insurance coverage.

  • Reasonable and customary fees: The average cost for health services in a geographic area that insurance plans use to decide how much they will pay for those services. If a doctor’s fees for a service are higher than average, the patient must pay the difference.

Types of Health Insurance
The following information can help you understand the different types of health insurance coverage.
Private insurance
Before HMOs and PPOs were developed as systems to contain rapidly increasing health care costs, most people had one option for private health insurance: fee-for-service coverage. This type of plan generally does not place any restrictions on which doctors or hospitals you choose. You simply visit the doctor, hospital, or health care center of your choice, anytime or anywhere, submit a claim form, and the health insurance company pays the bill. Typically, you share some of the cost in the form of co-payments or co-insurance, and some types of services may not be covered.
Although fee-for-service plans allow for the greatest freedom in choosing doctors and hospitals, there may be restrictions to some services, including mental health services, physical therapy, home health care, investigative treatments, or alternative medicine.
HMO
An HMO can be thought of as a health care insurance club, with patients and doctors as members. It is set up to keep health care costs down by working with patients to comprehensively manage their health care. In an HMO, a person chooses a primary care doctor from an approved network.
As a member of an HMO, you pay a monthly premium and a small additional co-payment for each office visit. An HMO generally does not require you to submit any claim forms, unless you visit doctors who are not members of the plan.
An HMO may be an actual health care center, in which all of the doctors in the office are part of the organization. In other cases, individual doctors contract with the HMO to care for patients covered under the plan. This agreement is known as an individual practice association (IPA).
Because you pay a flat rate to your HMO, the plan will often encourage and cover preventive care intended to avoid the need for more expensive care later. However, as with most insurance plans, covered services vary. For example, some types of mental health services, alternative treatments, and physical therapy may not be covered, or covered only on a limited basis.
Restrictions
Compared with fee-for-service plans, total medical costs in an HMO are usually lower and more predictable. However, these reduced costs are typically accompanied by additional restrictions, including:
  • Fewer choices of doctors and hospitals, as only doctors and hospitals that are members of the HMO are covered under the plan, although many companies make exceptions as medically necessary and for emergencies. Many HMOs allow you to visit doctors outside the plan for a higher fee (called “out of network” care).

  • Access to a specialist often requires a referral from your primary care doctor.

  • Precertification is usually required before nonemergency hospital visits and some types of specialist care, and a person needs to call the HMO within 24 hours of any emergency care.

  • Pre-existing conditions may not be covered. (Some rules are changing under the 2010 Health Reform law.)

  • Some types of services, such as mental health services, physical therapy, home health care, or investigational treatments, may not be covered.
PPO
A PPO is a type of health insurance in which a person is offered a network of approved doctors, and most of the medical costs are covered when visiting doctors that are part of the network. However, a PPO typically does not require you to see a designated primary care doctor who manages your care and controls your access to a specialist. A PPO may also be more flexible than an HMO in allowing visits to out-of-network doctors, although these visits usually require you to pay a larger portion of the bill. It may also require you to pay a deductible or co-insurance for some services.
Restrictions
The restrictions associated with a PPO may include:
  • Doctors and hospitals that are limited to the PPO network, although this selection tends to be larger than the network of an HMO

  • Precertification may be needed for some types of care, especially if the facility or doctor is outside of the network.

  • Pre-existing conditions may not be covered. (Some rules are changing under the 2010 Health Reform law.)

  • Some types of services, such as mental health services, physical therapy, home health care, investigational treatments, or alternative medicine may not be covered.
Government-sponsored insurance
Medicare
Medicare is health insurance provided by the federal government for those 65 and older, as well as for some disabled Americans. People over 65 who are eligible for Social Security or Railroad Retirement benefits automatically qualify for Medicare, along with their spouse. Medicare has different “parts” that serve different, sometimes complementary, purposes.
  • Medicare Part A covers inpatient care (such as hospital care), skilled nursing care, hospice care, and a limited scope of home care services. These services are free.

  • Medicare Part B provides financial coverage for doctor services, outpatient care, physical and occupational therapy, and selected supplies that are deemed medically necessary.

  • Medicare Part C, also called Medicare Advantage, are insurance plans managed by private Medicare-approved companies. It combines Medicare Parts A and B and may include prescription drug coverage.

  • Medicare Part D is a benefit that people can enroll in that covers prescription drugs. The Medicare Modernization Act of 2003 (MMA) provided this prescription drug benefit.
However, Medicare does not cover all health care expenses. These expenses are called “gaps” and some people decide to purchase a Medigap policy to pay co-payments, co-insurance, deductibles, and other out-of-pocket expenses. During the past several years, there have been many revisions to the Medicare laws about what outpatient treatments are covered. Depending on a patient’s Medicare plan, they may be responsible for a 20% co-payment if no other insurance is available.
Medicaid
Medicaid is a health insurance program paid for jointly by the federal and state governments and administered by each state. It covers people who are eligible because they are elderly, blind, or disabled, as well as certain people in families with dependent children. Each state operates the program individually and determines who is eligible and what services are covered in that specific state.
For more information about Medicare and Medicaid visit www.cms.gov. Medicare information can also be found at www.medicare.gov. And, some rules on Medicare and Medicaid are changing under the 2010 Health Reform law. See www.healthcare.gov for full information.
Other coverage
Other types of insurance cover a person’s needs not covered by health insurance.
Supplemental insurance. A supplemental insurance policy helps cover expenses not covered by your primary insurance or the costs you pay as part of your existing plan. This policy generally covers deductibles, co-insurance, co-payments, and other out-of-pocket expenses. It may also offer additional benefits, such as compensation for lost earnings due to missed work.
Disability insurance. Disability insurance replaces income lost if you are unable to work due to a long-term illness or injury. Such coverage is often provided through your employer or government-sponsored programs, although individual policies are also available.
Hospital indemnity insurance. Hospital indemnity insurance provides limited coverage for hospital stays, usually a fixed amount each day, up to a maximum length of stay. People may decide to purchase supplemental insurance (see above) if their basic insurance plan limits coverage of hospital care.
Long-term care insurance. Because most basic private insurance plans and Medicare generally provide very limited coverage for long-term care such as nursing home care, some people elect to obtain additional coverage to offset the costs of such care.
Taxes
Fortunately, some medical expenses not covered by insurance, including mileage for trips to and from appointments, prescription drugs, and meals during lengthy medical visits, can be deducted from federal income taxes. A tax advisor can help clarify these rules.
Insurance and clinical trials
Many states have laws or agreements requiring health plans to play for regular care that is part of a clinical trial, a research study involving people. The National Cancer Institute (NCI) has a map and links to states that provide this coverage. In addition, the NCI offers a guide to clinical trials and insurance coverage.
Medicare covers routine costs related to trials that test investigational cancer therapies. In some programs, researchers will reimburse for expenses associated with participating in the research such as transportation, childcare, meals, and accommodations. 
Finally, The NCI and Department of Defense (DOD) have entered into an agreement for TRICARE beneficiaries to allow active duty members, their eligible family members, retirees and their eligible family members, and survivors of all uniformed service members to participate in certain NCI-sponsored clinical trials.

Learn more about this program at www.cancer.gov/cancertopics/factsheet/NCI/TRICARE.
Insurance Examples
Understanding the benefits and limitations of your health insurance policy can be challenging, but it is important to learn exactly what your coverage provides. The following examples may help illustrate how co-pays, co-insurance, and deductibles work. You are strongly encouraged to talk with a representative of your insurance provider, who can explain the details of your specific coverage.
Insurance Example #1: Co-pays
Let’s say Anna needs to see two specialists this week: Dr. Smith and Dr. Jones. Dr. Smith charges $100 a visit, and Dr. Jones charges $500 a visit. If Anna’s insurance states she pays $20 co-pays for visits, how much does she pay out-of-pocket at the appointments?
Answer: Anna will pay $20 at each doctor’s office. Since a co-pay is a set amount of money, the patient’s payment doesn’t depend on the amount of the bill.
Insurance Example #2: Co-Insurance
Let’s say Martin needs to see two specialists this week: Dr. Andrews and Dr. Adams. Dr. Andrews charges $100 a visit, and Dr. Adams charges $500 a visit. If Martin’s insurance states he must pay 20% co-insurance for visits, how much does he pay out-of-pocket at the appointments?
Answer: Multiply each bill by the co-insurance percentage.
Martin’s payment to Dr. Andrews would be $20, since $100 x 20% = $20
Martin’s payment to Dr. Adams would be $100, since $500 x 20% = $100
Insurance Example #3: Co-Insurance and Deductibles
Let’s say Kathy has a deductible of $2,000 a year, and her co-insurance for a hospital visit is 20%. She had a surgery that cost $10,000. How much does she have to pay out-of-pocket?
Answer:
Step One: Subtract the deductible from the total bill, so $10,000 - $2,000 = $8,000.
Step Two: Then, multiply that difference by the co-insurance percentage, so $8,000 x 20% = $1,600. This gives the patient’s co-insurance amount.
Step Three: Add together the deductible ($2,000) and the co-insurance amount ($1,600) to find the total amount that the patient would pay. In this example, Kathy would pay $3,600.


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